A Diary of MS, from pre-diagnosis on....

I have recorded my experiences with initial symptoms of multiple sclerosis (MS), and how they (and I) have been dealt with by the NHS. I hope this is of use to those of you as yet undiagnosed, to illustrate what happens and how it happens, and how you get a diagnosis.

Name:
Location: Stockport, United Kingdom

Background in environmental science, keen on making things work, from altering jeans to FIT, to cooking alternative cakes, replacing bad flooring, making a robot..

Thursday, January 24, 2008

Diagnosis = Multiple Sclerosis

You see, now I get a diagnosis. At last. At least I'd already read up on MS and knew some things about it.
It was only because I asked about treatment for the extreme tiredness (fatigue) that the neurologist said I could try amantadine hydrochloride for it. He would have to tell my GP that I should have it, as it is an off-label use.
Luckily, this area has an MS nurse and there and then she handed me some information about disease-modifying drugs, from which I could pick one to suit, and she made an appointment with me next week at home.
I felt like a big hole had opened up inside, never to be filled again.

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