A Diary of MS, from pre-diagnosis on....

I have recorded my experiences with initial symptoms of multiple sclerosis (MS), and how they (and I) have been dealt with by the NHS. I hope this is of use to those of you as yet undiagnosed, to illustrate what happens and how it happens, and how you get a diagnosis.

Name:
Location: Stockport, United Kingdom

Background in environmental science, keen on making things work, from altering jeans to FIT, to cooking alternative cakes, replacing bad flooring, making a robot..

Monday, November 21, 2005

September 2005. Bureacracy gone mad

I received a date for the VEP test (which I had been told "I may have") from the Manchester Royal Infirmary, but not for the lumbar puncture (which I definitely should have) at Hope Hospital.
I rang Hope. It turned out that I had never been booked in or the LP. They knew I was to have a VEP, and were waiting to hear about it from their own VEP group so that both could be booked for the same day.
"Hello, I'm not supposed to be having it with you...."
I wonder if I would ever have had the test if I'd not rung. I wish I'd rung before. I just sat waiting for 6 weeks.
They said oops, and I could have the lumbar puncture on Monday.
How different that was....

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