A Diary of MS, from pre-diagnosis on....

I have recorded my experiences with initial symptoms of multiple sclerosis (MS), and how they (and I) have been dealt with by the NHS. I hope this is of use to those of you as yet undiagnosed, to illustrate what happens and how it happens, and how you get a diagnosis.

Name:
Location: Stockport, United Kingdom

Background in environmental science, keen on making things work, from altering jeans to FIT, to cooking alternative cakes, replacing bad flooring, making a robot..

Thursday, January 24, 2008

Wednesday 16th November: I met with the MS nurse who, unlike every other member of the medical profession, seemed to be happy that I’d found out my own information, and indeed named some medical reports and websites to read. She was treating me like an adult, and was happy to answer my (many) questions. She seemed confident that there were people out there (and pointed me to them) that could actually make a positive difference. She told me to fill in a tiredness log before I started to take the amantadine in order to gauge how well it works.
I told her I had chosen to go on Copaxone.
I was still having low moments about the diagnosis though – you have to have something seriously wrong with you for a medical person to come to your home.

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